Unproven doesn’t mean ineffective
From researching ALS, it was clear how quickly people deteriorated from the disease. Yet also, we were finding stories of people slowing it down and even reversing the symptoms. With these stories came a number of ideas and theories as to the causes of the disease and also treatments. These treatments of course are unproven and sit outside of mainstream medicine, but what does that actually mean? As one open-minded doctor put it to me;
“Just because it’s unproven, doesn’t mean it’s ineffective, it just means it’s unproven.”
There are plenty of treatments, therapies and approaches to curing/treating illnesses that sit outside of mainstream medicine and if your life is on the line, then all options are on the table.
However, research your options and make an informed decision as best as you can – there will be treatments out there that are ‘way-off-the-planet’ and not to be entertained! The specialist I worked with was cautious but open-minded to other approaches. He referred to them as complimentary as opposed to alternative, and requested that if we were going to trial a complimentary approach, to let him know in case he knew of any potential conflicts with my condition – this is a useful dialogue to have!
About these strategies
Welcome. These strategies are for people who’ve been diagnosed with a terminal or life threatening illness. If that’s you, I’m sharing them because I know something about what you’re going through, they helped me and so maybe they can help you too.